We Are Walking in Honor of Briella. Please Help Us Meet Our Goal.

Tuesday, April 2, 2013

6 Months Old!!!!

WOW!!! Can you believe it?! Miss Briella has been teaching the world never to give up for 6 MONTHS! Thursday is her actual half birthday. Since today is my birthday, and not a fun one, I decided I would rather celebrate her half birthday so cake for Briella we will have!
Thursday Briella had her last synagis shot. The insurance company will not cover any more. They are $2900 a shot. She gets the monthly to give her antibodies to help her fight RSV. RSV is an illness that 90% of children have had at least once before the age of two. It's usually nothing more than a cold for a healthy child. For Briella, it would mean being hospitalized & getting out back on the ventilator. It could mean worse. Rsv gives me panic attacks. Anyone coughing or sniffling gives me panic attacks. I am just fine being in isolation.
Since we are in isolation, we cannot go out to eat for birthday celebrations. So today, after Briella's appointment at Children's Mercy Hospital, we went to Nelson Atkins Museum and had a wonderful picnic on the lawn. Brian fed me grapes! Hehe. We had more fun than if we were at a restaurant!
At Briella's appointment with the feeding therapist, we learned that she is a little "tongue tied." She might have to have the skin under her tongue cut in several months. She is having some oral development delays that cause issues with eating. Also, her reflux is bad. She is having aversions, choking, milk shoots out of her nose, and she refuses to eat. After spending the whole morning at the hospital, we have made so many changes to see if we can turn this around & avoid a feeding tube. They have decided to up her dose of medicine that helps her stool. She still cannot go on her own. They have switched her reflux meds from Zantac to Prevacid. They want us to switch her formula. So many changes at once makes me really nervous! We shall see!
Briella weighs 11 pounds 6 ounces. My ONE pound baby is 11 pounds!! Wahoo!
Life is so great. We are so blessed. It is the best feeling to be at home with the whole family. Sister & Briella have an amazing bond already. It's so awesome to see.
All 4 of us will be walking in the March of Dimes walk the end of this month. If you would like to help us reach our goal you can make a tax deductible donation at www.Marchforbabies.org/briellasjourney

I have also started my own boutique named after Briella in hopes to get some extra income so that staying home with her won't become a burden on the household finances. It is mostly girls clothing that is perfect for birthdays/parties/holidays/events/pictures & very cute. I made all of my items less expensive than my competitors :)

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